Living and Dying with Dignity: Lessons from Older Adults

Disclaimer

The intent of this video is for clinician training and not public use.

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Document Type

Open Access Video

Publication Date

2024

Keywords

older adults, individual reflections, dignity, death and dying, clinical staff, clinician training, support staff, participant-led conversations, self-determination

Description

Dignity can only truly be achieved when one is heard and understood. This interview was co-designed with an older adult living in a congregate setting. Initial conversations began around the themes of death and dying and what knowledge persons wished their clinical and support staff knew. We met three times, the first time guided by structured questionnaire. Subsequent conversations were lead participant. From these initial discussions a new interview guide was created. Two additional meetings were held to revise and review what would be asked in the video you are about to see. Anna* speaks from the heart and a wealth of lived experience, please enjoy and reflect.

Comments

Multiple short open-ended interviews were used to co-design an interview guide. The goal of these conversations was not to create a template or census on what elements of care or life are most valued, but rather to capture individual reflections to support the importance of dignity and self-determination in all phases and stages of life. Below is the interview guide we co-designed and the associated time stamps.

Sheridan Research

Generator at Sheridan

Running Tme/Duration

0:19:52

Time Stamps

0:00:27 After the stroke, how have caretakers treated you?

0:01:40 How could people better provide care? Can you tell us more about how people confuse your challenge hearing with not being able to understand?

0:03:25 Can you tell us about the challenges you faced into the retirement home?

0:03:58 What can people do to make you feel respected?

0:05:10 What does it mean to you to be able to manage your own health?

0:08:08 When we talked before, you said that medicine was more about money, can you explain what you meant by that? 0:10:08 What does it mean to you to be independent? Do you feel independence is something that is still important to you?

0:11:02 Do you feel there is space or place or respect of your faith?

0:12:54 What are your feelings about death?

0:17:45 You said that things were better in the 1950s, what made it better?

Creative Commons License

Creative Commons Attribution 4.0 License
This work is licensed under a Creative Commons Attribution 4.0 License.

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